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Advocates want national standards for LGBTQ identities in medical records

Push underway for inclusion of gender, sex and sexual identity information in health records
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City of Toronto officially proclaim June as Pride Month in Toronto and raise the Progress Pride flag at City Hall in Toronto on Thursday, June 1, 2023. THE CANADIAN PRESS/Nathan Denette

Correcting health-care providers who typically assume he害羞草研究所檚 heterosexual gets tiring for Jeremy Long, who wants his queer identity to be acknowledged and counted in electronic health records.

害羞草研究所淚t害羞草研究所檚 taxing on a person害羞草研究所檚 mental health and their ability to be understood by the world and to have to constantly feel like it害羞草研究所檚 a piece of the fight of coming out again and again, which can be retraumatizing,害羞草研究所 the 38-year-old said from Vancouver.

害羞草研究所淧eople aren害羞草研究所檛 always asking questions that lead to more understanding. They害羞草研究所檙e just labelling and so to have to correct that, it feels exhausting,害羞草研究所 Long said.

Long, who came out at age 15, said LGBTQ patients should be asked appropriate questions instead of sometimes facing judgment and feeling unsafe when they access care.

Advocates are also pushing for the inclusion of gender, sex and sexual identity information in electronic health records through a co-ordinated and standardized approach across the country.

The Community-Based Research Centre, based in Vancouver, released a report Wednesday calling for the addition of more fields on medical forms in all jurisdictions to capture the full diversity of sexual orientation and gender identity.

Michael Kwag, the centre害羞草研究所檚 executive director, said that information is either misrepresented or not properly collected in Canada害羞草研究所檚 health-care system but including it would make it easier to plan for services the LGBTQ community needs.

害羞草研究所淟esbian, gay, bisexual or queer people do have unique health needs and at times also experience higher rates of physical and mental health issues,害羞草研究所 Kwag said.

Trans people may also not be screened for breast, cervical or prostate cancer if their electronic health records are not updated, he noted.

The research centre害羞草研究所檚 report says medical records that properly recognize LGBTQ identities will improve access to appropriate care and lead to better health outcomes.

Kwag said clerical and administrative workers, as well as health-care professionals, should be trained to better understand sex and gender as distinct concepts, with sex referring to someone害羞草研究所檚 physical characteristics, such as male, female and intersex, and gender meaning how people identify themselves.

He also cautioned health-care workers about the harms of 害羞草研究所渄eadnaming害羞草研究所 patients and using incorrect pronouns, which can happen if medical records are not updated to reflect their gender identity.

The research centre害羞草研究所檚 report recommends Health Canada work with provinces and territories to encourage adoption of evolving terminology to include LGBTQ identities in health records.

Health Canada did not immediately respond to a request for comment. The Canadian Institute for Health Information said it is working with provinces and territories to come up with a national standard on sex and gender data.

Francis Lau, a retired researcher at the University of Victoria害羞草研究所檚 school of health information science, said that four years ago, he created the ongoing working group on sex, gender and sexual orientation with Canada Health Infoway, a federally funded non-profit working to improve health-care delivery through use of digital records.

Lau, who co-chaired the group until recently, said inclusion of various sexual identities would be a significant step toward modernizing Canada害羞草研究所檚 medical records systems.

The working group released a national plan two years ago for provinces and territories to consult with various community groups about collecting and using information related to gender, sex and sexual orientation. Some provinces, including Alberta and British Columbia, have published standards on those issues.

He said the group is trying to come up with coding in medical records for various sexual orientations and for those who may be gender fluid or do not want to disclose that information for personal reasons.

害羞草研究所淭he action plan only talks about what needs to be done,害羞草研究所 Lau said. 害羞草研究所淚t left the when, how, who to the jurisdictions and organizations, the governments, because you need time and resources to do it.害羞草研究所

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